Follow-up with "support group" after diagnosis

• Why is it needed?
After the patient has been diagnosed, a void occurs where patients and relatives themselves must seek information and appropriate help.

• How does it work?
All patients diagnosed are called for follow-up meetings with a "support group" consisting of physicians, specialist nurse, curator, nutritionist, physiotherapist and aid attendant. First meeting with specialist nurse to chart how much the patient / relatives know about the disease and how the patient's social network looks. Also time for patient reflection and questions. Thereafter an individual plan can be designed where the help needed can be obtained from the "support group". In Sweden, we already have "minnesmottagningar" with the above features but they are not found anywhere in the country and the patient must ask his doctor for referral (which is troublesome if the are in the denial phase).


• What is the essence of your idea? Which function is vital to it?
The essence is to build an infrastructure around the patient. Caregivers need to work in new ways.

Comments
  • Björn Arvidsson Challenge Creator 6 months ago

    Great! Love it. Is/Should also relatives/caregivers be invited to provide extra support? Could there be a support group for caregivers only as well? Who is managing/administering the group/plan? What happens if the patient fall into denial and skip meetings?

  • Anna Pedersen 6 months ago

    This is a great stratagy and should be for all dementia patients. Where and when can we identify the patients before they contact the healthcare about their memory problems? That would add a lot of value to the way of working. Often, the family and close relatives know long before the person contacts the healthcare.

  • Cecilie Hilmer 6 months ago

    Nice idea! I think Björns questions are very relevant to define it a bit more. And, I still wonder about the most important function of this idea: So is the crucial part of the idea to have all these experts of the support group in one room at once? or is it rather that these communicate with one another?

Build-ons from this idea

  • Digital support groups

    Maybe a digital supportgroup would be possible to install in the counties where those do not exist. That would make it more available and equal independently of where the patient

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