Follow-up with "support group" after diagnosis
• Why is it needed?
After the patient has been diagnosed, a void occurs where patients and relatives themselves must seek information and appropriate help.
• How does it work?
All patients diagnosed are called for follow-up meetings with a "support group" consisting of physicians, specialist nurse, curator, nutritionist, physiotherapist and aid attendant. First meeting with specialist nurse to chart how much the patient / relatives know about the disease and how the patient's social network looks. Also time for patient reflection and questions. Thereafter an individual plan can be designed where the help needed can be obtained from the "support group". In Sweden, we already have "minnesmottagningar" with the above features but they are not found anywhere in the country and the patient must ask his doctor for referral (which is troublesome if the are in the denial phase).
• What is the essence of your idea? Which function is vital to it?
The essence is to build an infrastructure around the patient. Caregivers need to work in new ways.